22 Websites:Organisations:Summaries:Related categories:Related keywords:Related locations:
rirosz.huRitka és Veleszületett Rendellenességgel Élők Országos Szövetsége (RIROSZ)The RIROSZ website provides comprehensive information in Hungarian about rare diseases, managed by the organization and its affiliated groups.Health → Rare Diseases 36 Society → Social Issues 587 patient support 30 social services 190 volunteer 591 donation 605 healthcare 2182
mpstarsasag.huMagyar Mukopoliszaccharidózis TársaságThe Magyar Mukopoliszaccharidózis Társaság (MPS Társaság) is a Hungarian organization dedicated to supporting families affected by mucopolysaccharidoses (MPS).Health → Rare Diseases 36 research 1480 family 6551 Sopron District → Sopron 1895
bbsbarnabas.huBBS Barnabás Gyógyulásáért AlapítványThis website describes the BBS Barnabás Gyógyulásáért Alapítvány, a foundation established to support Buza Barnabás, a child with Bardet-Biedl syndrome.Health → Rare Diseases 36 developmental therapy 10 medical support 11 genetic disorder 12 Sümeg District → Ukk 125
adin.huEgyütt Ádin Kezét Fogva AlapítványThe Együtt Ádin Kezét Fogva Alapítvány aims to provide gene therapy for children with Duchenne syndrome.Social Services → Community Support 596 Social Services → Volunteering 102 medical support 11 genetic disorder 12 Debrecen District → Debrecen 6321
ritkabetegsegeklabor.huRare Diseases Labs – HungaryThe Rare Diseases Lab provides specialized diagnostic services focused on identifying chronic conditions difficult to diagnose.Healthcare → Medical Services 2396 testing 496 diagnosis 706
huntington.huMagyar Huntington TársaságThe Magyar Huntington Társaság provides advocacy for individuals affected by Huntington’s disease.Health → Rare Diseases 36 genetic disorder 12 patient support 30 neuroscience 40 research 1480
akekrozsa.huAgot BenceThis website is a blog maintained by Arany-Kovács Rozália, who has been seeking a correct diagnosis for a rare genetic disease for 39 years.Health → Rare Diseases 36 Business → Internet 7893 medical support 11 genetic disorder 12
sagidominik.huDuchenne-el AlapítványThis website aims to raise funds for Dominik Sági, a four-year-old boy diagnosed with Duchenne muscular dystrophy.Business → Healthcare 3598 Pécsvárad District → Zengővárkony 15
mentsukmegbenit.huTündérkör AlapítványThis website is dedicated to raising funds for Micskó Benjámin, a four-year-old boy diagnosed with a severe, currently incurable form of Duchenne muscular dystrophy.Health → Rare Diseases 36 Business → Healthcare 3598 medical treatment 18 fundraising 72 childhood 781 Hungary → Budapest 53962
care.togetherinsma.huBiogenThis website provides comprehensive information about Spinal Muscular Atrophy (SMA), a rare genetic neuromuscular disorder.Health → Medical Ailments 552 genetic disorder 12 patient care 268
ritkabetegsegakademia.huDiamond Congress Ltd.The Ritka Betegség Akadémia (Rare Disease Academy) is hosting an event in 2024.Essentials → Health 18880 medical 499 conference 680 healthcare 2182 education 8382 Hungary → Budapest 53962
pkuegyesulet.huMagyarországi PKU EgyesületThe Magyarországi PKU Egyesület is a Hungarian association dedicated to supporting individuals and families affected by phenylketonuria (PKU), a rare inherited metabolic disorder.Essentials → Health 18880 genetic disorder 12 patient support 30 Szigetszentmiklós District → Dunaharaszti 642
liberatelife.huSwedish Orphan Biovitrum AB (publ)Liberate Life is Sobi’s vision for the future of hemophilia, aiming to transform the lives of people living with rare diseases.Health → Rare Diseases 36 Health → Chronic Diseases 15 wellbeing 638 lifestyle 1847 health 6798 Hungary → Budapest 53962
dusanvilagaert.huDusán Világáért AlapítványThis website promotes fundraising for Dusan, a four-year-old boy battling a severe and incurable muscular dystrophy.Healthcare → Medical Services 2396 Social Services → Community Support 596 child health 60 family support 152 charity 523
tsc.huMagyar Sclerosis Tuberosa AlapítványThe Magyar Sclerosis Tuberosa Alapítvány (Hungarian Sclerosis Tuberosa Foundation) provides support and resources for individuals and families affected by tuberous sclerosis complex (TSC).Health → Rare Diseases 36 genetic disorder 12 family support 152 neurology 202 mental health 1356 Hungary → Budapest 53962
uvegcsont.huÜvegcsontú Betegekért Közhasznú AlapítványThe Üvegcsontú Betegekért Közhasznú Alapítvány is a non-profit foundation dedicated to supporting individuals affected by Osteogenesis Imperfecta (OI).Health → Rare Diseases 36 foundation 919 rehabilitation 1201
vhl.huMagyar VHL TársaságThe Magyar VHL (von Hippel-Lindau) Society was founded in 1999 as a public benefit organization.Health → Rare Diseases 36 registry 46 genetics 120 medical 499 Hungary → Budapest 53962
turnerszindroma.huTurner-szindróma.huThis website provides information and support for parents and individuals affected by Turner syndrome.Health → Rare Diseases 36 Health → Medical Ailments 552 medical 499 parenting 638 health 6798 Sopron District → Sopron 1895
dravet.huDravet Szindróma Magyarország EgyesületThis website provides comprehensive and up-to-date information about Dravet Syndrome (SMEI).Health → Rare Diseases 36 epilepsy 13
cslbehring.huCSL BehringCSL Behring Magyarország is a website dedicated to the company's operations in Hungary.Business → Healthcare 3598 Business → Companies 61 research 1480 therapy 3179 innovation 4150
vedettseg.huVédettség Immunbiológiai Termék Gyártók és Forgalmazók EgyesületeThe Védettség Association is a Hungarian organization dedicated to advancing patient-centered healthcare in the country.Health → Pharmaceuticals 411 Business → Healthcare 3598
angelman.huHungarian Angelman Syndrome FoundationThe website provides information about Angelman syndrome, a rare genetic neurological disorder.Society → Social Issues 587 genetic disorder 12 neurology 202 pediatrics 277 Hungary → Budapest 53962